Henley Standard Property
HOME

Date:

Order your copy Advertise with us! HENLEY PAGES
Delivering the news from Henley on Thames and South Oxfordshire for over 100 years
  News     Sport    Celebrity   What's On Regulars Community Info Henley Standard TV Lifestyle Property Jobs Classifieds Gallery Trade
                               Follow us    Follow us    Newsfeed Search the Henley Standard  
Boy’s family back hospice appeal
Published 14/07/14



THE family of a Sonning Common boy with a rare neuro-muscular disease is appealing for money to refurbish the children’s hospice he attends.

Annabelle and Kevin Jarvest’s son Dylan, seven, has mitochondrial myopathy and has been visiting Helen House in Oxford for just over a year.

The Helen and Douglas House charity needs another 500,000 to pay for the 1.5 million refurbishment of the hospice.

The Jarvests, who live in Sedgewell Road and have another son Charlie, 13, say Dylan enjoys visiting Helen House, where he uses the playroom and gardens.

His favourite activities are music therapy and visiting the spa.


Mrs Jarvest said: “They are on top of his list and they help him express himself. He even made an original song for me recently. The spa is great for him to do hydro-exercise. It is such fun he doesn’t realise that it is exercise, not just playtime.”

It is 30 years since Helen House opened as the world’s first children’s hospice and the facilities need to be modernised.

Mrs Jarvest said: “It is such a wonderful place which the whole family enjoys coming to, giving us vital help and support. However, it does need updating.” Improvements will include piped oxygen in all the rooms and wider corridors and spaces so larger, modern wheelchairs and beds can be moved around.

The spa, music, art and play areas as well as the kitchen and dining areas will be refurbished and there will be a new dedicated teaching space for the children to continue their lessons during their stay.

Helen and Douglas House has received 436,000 from NHS England and has raised 500,000 through donations since the appeal was launched at the end of last year.

Janet Carruzzo, community fund-raiser, said: “We would like to thank everyone who has made a donation.

“We need to raise the final 500,000 by the end of the summer to complete the work to ensure our families can enjoy the most up-to-date facilities when they come and stay with us.”

To make a donation, call 01865 799150, email fundraising @helenanddouglas.org.uk or visit www.helenanddouglas.org.uk

Published 14/07/14

MOST POPULAR
Browns to close after a quarter century trading
Halloween and Bonfire Night: Where to go
College plan to build campus on playing fields
High winds cause road closures
Woman launches campaign for equality in sport
Driver injured in road accident
Farewell to those magnificent flowers
Browns to close after 25 years
LATEST NEWS HEADLINES
Lest We Forget: launch of Poppy Appeal
Henley skate park half pipe sold
High winds cause road closures
Oratory withdraw public access to gym
Angie Paterson becomes deputy leader of SODC
John Howell MP elected to 1922 committee
Local shop supports 'Wear it Pink' campaign
Secretary of the Kenton Theatre dies
Pensioner missing from Henley found
Stoke Row driver airlifted to hospital
College plan to build campus on playing fields
Fire at Didcot B power station
Latest Video View more from   Henley Standard TV
ADVERTISE WITH US
LATEST SPORTS HEADLINES
Rugby academy unaffected by Wasps' move
Record number tackle Frieth Hilly
Robinson shines as Hawks march on
Red Kites put on five-star display
Hosts hit back in style to claim win
Top Videos
 
Most Popular
 
 
 
 
Higgs Group
HIGGS GROUP
Tel: 01491 419400
www.higgsgroup.co.uk
HENLEY PAGES
Tel: 01491 419419
www.henleypages.com
HIGGS PRINTING & DESIGN
Tel: 01491 419429
www.higgsprinting.co.uk
HIGGS OFFICE SUPPLIES
Tel: 01491 419499
www.higgsofficesupplies.co.uk
HENLEY LIFE MAGAZINE
Tel: 01491 419449
www.henleylife.co.uk
HIGGS GROUP, Caxton House, 1 Station Road, Henley on Thames, Oxfordshire, RG9 1AD.

Cookie Policy | Copyright and Terms | Competition Rules | Contact Us | Advertise with us | Site Map
© Higgs & Co (Printers) Limited 2013  |  Registered in England number 1418717