Henley Standard Property
HOME

Date:

Order your copy Advertise with us! HENLEY PAGES
Delivering the news from Henley on Thames and South Oxfordshire for over 100 years
  News     Sport    Celebrity   What's On Regulars Community Info Henley Standard TV Lifestyle Property Jobs Classifieds Gallery Trade
                               Follow us    Follow us    Newsfeed Search the Henley Standard  
Boy’s family back hospice appeal
Published 14/07/14



THE family of a Sonning Common boy with a rare neuro-muscular disease is appealing for money to refurbish the children’s hospice he attends.

Annabelle and Kevin Jarvest’s son Dylan, seven, has mitochondrial myopathy and has been visiting Helen House in Oxford for just over a year.

The Helen and Douglas House charity needs another £500,000 to pay for the £1.5 million refurbishment of the hospice.

The Jarvests, who live in Sedgewell Road and have another son Charlie, 13, say Dylan enjoys visiting Helen House, where he uses the playroom and gardens.

His favourite activities are music therapy and visiting the spa.


Mrs Jarvest said: “They are on top of his list and they help him express himself. He even made an original song for me recently. The spa is great for him to do hydro-exercise. It is such fun he doesn’t realise that it is exercise, not just playtime.”

It is 30 years since Helen House opened as the world’s first children’s hospice and the facilities need to be modernised.

Mrs Jarvest said: “It is such a wonderful place which the whole family enjoys coming to, giving us vital help and support. However, it does need updating.” Improvements will include piped oxygen in all the rooms and wider corridors and spaces so larger, modern wheelchairs and beds can be moved around.

The spa, music, art and play areas as well as the kitchen and dining areas will be refurbished and there will be a new dedicated teaching space for the children to continue their lessons during their stay.

Helen and Douglas House has received £436,000 from NHS England and has raised £500,000 through donations since the appeal was launched at the end of last year.

Janet Carruzzo, community fund-raiser, said: “We would like to thank everyone who has made a donation.

“We need to raise the final £500,000 by the end of the summer to complete the work to ensure our families can enjoy the most up-to-date facilities when they come and stay with us.”

To make a donation, call 01865 799150, email fundraising @helenanddouglas.org.uk or visit www.helenanddouglas.org.uk

Published 14/07/14

MOST POPULAR
Wheelbarrow tipped in suspected vandalism
Pedestrian hit by car on Reading Road
Woman rescued from car crash by councillor
Second accident at black spot in five days
Landlord annoyed by roadside poster complaint
Gym closes early thwarting planned protest
Henley jeweller's rings hit the big screen
All set for Rewind
LATEST NEWS HEADLINES
New recycling service unveiled
New headmaster for the Oratory
Get set for the Henley Regatta for the Disabled
Artist shortlisted for watercolour prize
Man given restraining order after assault
Rowers give Boris's bottle a lift
Firefighters at blaze overlooking Rewind
New hope in hospital beds fight
CCTV released of robbery in Mill Meadows
Pedestrian hit by car on Reading Road
Shoplifter bradishes weapon when confronted
Peer’s plan for new house ‘like a prison’
Latest Video View more from   Henley Standard TV
ADVERTISE WITH US
LATEST SPORTS HEADLINES
Leander rower hurt after training accident
Dawkins wins it†for hosts
Anderson leads way to take top lady crown
Lottery winner
Roberts shines with bat as Henley enjoy stroll in park
Top Videos
 
Most Popular
 
 
 
 
Higgs Group
HIGGS GROUP
Tel: 01491 419400
www.higgsgroup.co.uk
HENLEY PAGES
Tel: 01491 419419
www.henleypages.com
HIGGS PRINTING & DESIGN
Tel: 01491 419429
www.higgsprinting.co.uk
HIGGS OFFICE SUPPLIES
Tel: 01491 419499
www.higgsofficesupplies.co.uk
HENLEY LIFE MAGAZINE
Tel: 01491 419449
www.henleylife.co.uk
HIGGS GROUP, Caxton House, 1 Station Road, Henley on Thames, Oxfordshire, RG9 1AD.

Cookie Policy | Copyright and Terms | Competition Rules | Contact Us | Advertise with us | Site Map
© Higgs & Co (Printers) Limited 2013  |  Registered in England number 1418717